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COVID-19 experience of people with severe mental health conditions and families in South Africa


Carrie Brooke-Sumner
Bongwekazi Rapiya
Bronwyn Myers
Inge Petersen
Charlotte Hanlon
Julie Repper
Laura Asher

Abstract

Background: People with severe mental health conditions, such as schizophrenia, and their family caregivers are underserved in low-  and middle-income countries where structured psychosocial support in the community is often lacking. This can present challenges to recovery and for coping with additional strains, such as a pandemic.


Aim: This study explored the experiences and coping strategies of  people with lived experience of a severe mental health condition, and family caregivers, in South Africa during the initial stages of the  coronavirus disease 2019 (COVID-19) pandemic.


Setting: This qualitative study was conducted in the Nelson Mandela Bay District, Eastern Cape, South Africa, in the most restrictive period of the COVID-19 lockdown.


Methods: Telephonic qualitative interviews were conducted  with people with lived experience (n = 14) and caregivers (n = 15). Audio recordings were transcribed and translated to English from  isiXhosa. Thematic analysis was conducted with NVivo 12.


Results: Participants described negative impacts including increased material  hardship, intensified social isolation and heightened anxiety, particularly among caregivers who had multiple caregiving responsibilities.  Coping strategies included finding ways to not only get support from others but also give support, engaging in productive activities and  taking care of physical health. The main limitation was inclusion only of people with access to a telephone.


Conclusion: Support needs for  people with severe mental health conditions and their families should include opportunities for social interaction and sharing coping  strategies as well as bolstering financial security.


Contribution: These findings indicate that current support for this vulnerable group is inadequate, and resource allocation for implementation of additional community-based, recovery-focused services for families must be  prioritised. 


Journal Identifiers


eISSN: 2078-6786
print ISSN: 1608-9685