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African Anthropologist © 1999 by Paul Nchoji Nkwi is licensed under CC BY-ND 4.0.
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Gender Dimensions of the Experience of the Burden of Epilepsy: An Example of the Manguissa Community in Cameroon
Abstract
This article examines the effects of gender in the experience of the
burden of epilepsy in the Manguissa culture. This exploratory research
combined a range of qualitative and quantitative techniques to meet the objectives. In-depth interviews and photo voice1 were used to collect qualitative data, while quantitative data collection relied on SF12 Scale, ComQol and semi-structured questionnaire. Study findings highlight gender as affecting the level to which one feels the burden of epilepsy. The dichotomy between the sexes was seen in the relationship with family members and the community; intimacy or relationship with the opposite sex; perception of importance and satisfaction about life; and control over life and emotions. This study suggests that being female and having epilepsy in the Manguissa culture is better than being male and having the same condition. This is because females enjoy intimacy and are capable of procreating, so they are perceived as those who still have things to offer despite their condition. Although females are emotionally diminished as compared to males, they are more optimistic about the future than males. We recommend equitable attention and resource allocation at the family level as the first solution to the burden felt by people with epilepsy.
burden of epilepsy in the Manguissa culture. This exploratory research
combined a range of qualitative and quantitative techniques to meet the objectives. In-depth interviews and photo voice1 were used to collect qualitative data, while quantitative data collection relied on SF12 Scale, ComQol and semi-structured questionnaire. Study findings highlight gender as affecting the level to which one feels the burden of epilepsy. The dichotomy between the sexes was seen in the relationship with family members and the community; intimacy or relationship with the opposite sex; perception of importance and satisfaction about life; and control over life and emotions. This study suggests that being female and having epilepsy in the Manguissa culture is better than being male and having the same condition. This is because females enjoy intimacy and are capable of procreating, so they are perceived as those who still have things to offer despite their condition. Although females are emotionally diminished as compared to males, they are more optimistic about the future than males. We recommend equitable attention and resource allocation at the family level as the first solution to the burden felt by people with epilepsy.
